ME/CFS

‘‘Despite having ME/CFS for 18 years, I am now able to work sustainably by applying self management skills and making adaptations to my role’’

Vitality360 employee

ME/CFS

 

What is ME/CFS?

According to NICE (National Institute for Health and Care Excellence) Guidelines, ME/CFS:

  • is a complex, chronic medical condition affecting multiple body systems and its pathophysiology is still being investigated

  • affects everyone differently and its impact varies widely – for some people symptoms still allow them to carry out some activities, whereas for others they cause substantial incapacity

  • is a fluctuating condition in which a person's symptoms can change unpredictably in nature and severity over a day, week or longer

  • can affect different aspects of the lives of both people with ME/CFS and their families and carers, including activities of daily living, family life, social life, emotional wellbeing, work and education.

All of these symptoms should be present:

  • Debilitating fatigue that is worsened by activity, is not caused by excessive cognitive, physical, emotional or social exertion, and is not significantly relieved by rest.

  • Post-exertional malaise after activity in which the worsening of symptoms:

    • is often delayed in onset by hours or days

    • is disproportionate to the activity

    • has a prolonged recovery time that may last hours, days, weeks or longer

  • Unrefreshing sleep or sleep disturbance (or both), which may include:

    • feeling exhausted, feeling flu-like and stiff on waking

    • broken or shallow sleep, altered sleep pattern or hypersomnia

  • Cognitive difficulties (sometimes described as 'brain fog'), which may include problems finding words or numbers, difficulty in speaking, slowed responsiveness, short-term memory problems, and difficulty concentrating or multitasking

What are the symptoms of ME/CFS?

There is no diagnostic test for ME/CFS and it is recognised on clinical grounds alone.

ME/CFS is likely to be suspected if:

  • You have had all of the persistent symptoms for at least 6 weeks (4 weeks in children/young adults)

  • Your ability to engage in work, education, social or personal activities is significantly reduced from before you were feeling ill

  • Your symptoms have not been explained through tests for any other conditions

ME/CFS Symptoms Profile

What causes ME/CFS?

According to the CDC (Centers for Disease Control and Prevention), the causes are still under investigation. Possible triggers could be:

  • Virus/infection

  • Stress affecting body chemistry

  • Changes in energy production

  • Possible genetic link

How is it diagnosed?

If you have been experiencing 4 or more of the core symptoms, then we recommend that you make an appointment to discuss this with your GP.

They may conduct a series of blood tests to rule out other possible causes of fatigue.

How is it treated?

Some NHS authorities have ME/CFS clinics which you could be referred to for specialist input, but service provision varies across the country.

Our comprehensive assessments and bespoke rehabilitation programmes get the best outcomes because:

  • We offer a multi-disciplinary team approach, whereas most models use a single disciplinary intervention

  • Our approach is based on the evidence of optimum intervention from the Pain Society & NICE guidelines. Read the evidence base that underpins our work here.

Rehabilitation may be a combination of

  • activity management including physical, cognitive, and social activities

  • sleep analysis, sleep management advice, rest, and relaxation training

  • dietetic assessment and advice

  • specific psychological interventions such as Cognitive Behavioural Therapy (CBT), Acceptance and Commitment Therapy (ACT) and Eye Movement Desensitisation and Reprocessing (EMDR)

 

 

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